RareMe Rindrankajy finday nataon'i Cong Fang, Shijian Luo and Jingzhao Pan

Ny endrika RareMe Rindrankajy finday nataon'i Cong Fang, Shijian Luo and Jingzhao Pan dia mpandresy sarobidy amin'ny 2021 A' Design Award Varahina amin'ny Sokajin'ny Fifanintsanana Famolavolana Teknolojia Finday, Fampiharana ary Rindrambaiko.

VarahinaFinday· 2021

RareMe Rindrankajy finday

nataon'i Cong Fang, Shijian Luo and Jingzhao Pan

Mpanjifa: Zhejiang University

Mpandresy A' Design Award Varahina amin'ny Sokajy Finday

16,439

Mpandresy Loka Voamarina

Hanamarina ny Sata Loka ho an'ny #111937

Jereo ao amin'ny A' Design Award Fanambarana ho an'ny Mpanao Gazety Marika Loka

Loko

Ny Endrika

Momba ny RareMe Rindrankajy finday

Ny RareMe dia rindrankajy finday ho an'ny olona voan'ny aretina tsy fahita firy. Ny RareMe dia mampifandray ny marary sy ny fianakaviany amin'ny hopitaly, ny fikambanana ara-pahasalamana, ny fivarotam-panafody, ny dokotera ary ny mpamokatra fanafody. Ny mpampiasa dia misafidy anjara toerana ho toy ny marary, mpianakavy na mpanome fikarakarana ara-pahasalamana mandritra ny fisoratana anarana. Ny marary dia afaka manoratra diary momba ny fitsaboana azy ireo, mikaroka fanafody sy fitsaboana manerantany, ary mahita mpampiasa hafa manana toe-javatra mitovy amin'izy ireo amin'ny alalan'ny algorithm fanoloran-kevitra. Ny rindrankajy dia azo alaina amin'ny iOS sy Android. Ny tanjona dia ny hanome fifantohana sy fikarakarana mitovy ho an'ny marary voan'ny aretina tsy fahita firy.

Ny Fankasitrahana

Momba ny A' Design Award Varahina

Nandresy ny A' Design Award Varahina ny famolavolana RareMe Rindrankajy finday, fankasitrahana malaza be omena ny famolavolana miavaka izay mampiavaka ny fahaiza-mamorona, ny fahazotoana ary ny fahamaotinan-tsaina. Ny mpandresy Varahina dia zavatra vita tanana mahay dia mahay ary mamorona mivantana izay manamafy ny traikefa be dia be, ny sarintsaina ary ny fahaizan-kafoy an'ny mpamolavola azy. Andrasana ho zavatra ankasitrahana be, ankafizina ary tiana, mahay amin'ny asa sady vaovao ny famolavolana RareMe Rindrankajy finday. Ity famolavolana nandresy ny A' Design Award Varahina ity dia mitahiry ny fomba fanao tsara indrindra amin'ny zavakanto, ny siansa, ny famolavolana ary ny teknolojia, ary tsara indrindra amin'ny fitandremana ny antsipirihany. Ny famolavolana RareMe Rindrankajy finday dia mahafa-po ny filana tsara, mikasika ny faniriana, mahasarika ny fihetseham-po ary misarika ny fahalianana.

Ao Ambadiky ny Endrika

Fitaovana ho an'ny Mpanao Gazety

Fankasitrahana, mpikambana ao amin'ny ekipa ary antsipiriany teknika nomen'ny mpanao endrika.

Toetra Manokana: Rare diseases are currently affecting about 300 million patients worldwide. Due to their rare conditions, they cannot get the same degree of treatment and assistance as normal patients, especially in some developing countries. RareMe helps rare diseases patients with their recovery and therapy. By connecting with global medical research, institutions, hospitals, doctors, and drug developers, they can receive equal attention and care.
Refy & Fonosana: Launched on IOS and Android
Marika: Rare Disease, app, patients, crowd-funding, mutual aid
Teknolojia Famokarana: RareMe is an APP,which connects patients and their families with health-care providers, such as hospitals, medical institutions, pharmacies, doctors, drug developers, pharmaceuticals companies, etc. It also links rare disease patients with similar conditions with medical workers through intelligent recommendation algorithm, so as to make them feel not alone.
Fanamby Endrika: RareMe connects patients and their families with health-care providers, such as hospitals, medical institutions, pharmacies, doctors, drug developers, pharmaceuticals companies, etc.

The biggest problem is to contact all stakeholders, promote app through hospitals, medical institutions, and major media platforms, so that patients scattered around the world can know and join RareMe. With the help of a large number of patients gathering to solve the problem of drug research and distribution by low-cost crowdfunding.
Fikarohana: Rare diseases are currently affecting 3.5% - 5.9% of the worldwide population. There are more than 7,000 rare diseases known in the world, however, only less than 10% of the diseases have approved treatment drugs or programs.

Based on this huge social problem, we have conducted extensive interviews with medical professors of Harvard University and Medical Laboratory of Zhejiang University, and are eager to connect rare disease patients around the world in a simple and portable way. We have connected many medical workers and patients via the development of RareMe. In order to improve this current condition, we will add in more and more health-care providers in the future.
Aingam-panahy: Rare diseases are lately affecting 3.5% - 5.9% of the worldwide population. More than 7,000 rare diseases are known, however, only less than 10% have approved treatment cures or programs. Due to the patients’ rare conditions, they’re not able to get the same degree of care and assistance as normal patients. Moreover, proper medicines and treatments are not available in some developing countries. They have few wardmates to communicate with, either.
Faharetan'ny Tetikasa: This project started in September 2019 in Hangzhou, China, and it is still under developing.
Fizotr'asa: At the beginning of registration, user will choose their own role as patients/family members or health-care providers, then enter the home page. Patients can write disease fighting diaries, seek for other users who have similar syndromes and fight together. They can also seek drugs and treatments around the world. As for health-care providers, they can contact patients quickly via RareMe and offer help.
Mpikambana ao amin'ny Ekipa: Cong Fang
Shijian Luo
Jingzhao Pan
Tianhe Zhang
Huan Lin
Loharanon-tsary: The four images used in the app design are from the SHETU website(https://699pic.com/), and have been authorized. The authorization agreement is shown in the link
Link: https://pan.baidu.com/s/1-s5VTAN_XWqHc2ZyToIegQ
Password：70bo