RareMe Ohun elo Alagbeka láti ọwọ́ Cong Fang, Shijian Luo and Jingzhao Pan

RareMe Ohun elo Alagbeka láti ọwọ́ Cong Fang, Shijian Luo and Jingzhao Pan jẹ́ aṣẹ́gun olókìkí púpọ̀ ti 2021 Àmì-ẹ̀yẹ Idẹ A' Design Award nínú Ẹ̀ka Ìdíje Àpẹẹrẹ Ìmọ̀-ẹ̀rọ Alágbèéká, Ohun-èlò Fóònù àti Sọ́fítíwéà.

IdẹAlágbèéká· 2021

RareMe Ohun elo Alagbeka

látọ̀wọ́ Cong Fang, Shijian Luo and Jingzhao Pan

Oníbàárà: Zhejiang University

Aṣẹ́gun Àmì-ẹ̀yẹ Idẹ A' Design Award nínú Ẹ̀ka Alágbèéká

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Aṣẹ́gun Àmì Ẹ̀yẹ Tí a Jẹ́rìísí

Jẹ́rìísí Ipò Àmì Ẹ̀yẹ fún #111937

Wo ní A' Design Award Ìwé Ìròyìn Àmì Ẹ̀yẹ

Àwọ̀

Àpẹrẹ Náà

Nípa RareMe Ohun elo Alagbeka

RareMe jẹ́ ohun elo alágbèéká fún àwọn ènìyàn tí àwọn àìsàn tó ṣọ̀wọ́n ń ṣe. RareMe ń so àwọn aláìsàn àti àwọn ẹbí wọn pọ̀ mọ́ àwọn ilé-ìwòsàn, àwọn ilé-iṣẹ́ ìṣègùn, àwọn ilé-ìtajà oògùn, àwọn dókítà àti àwọn tó ń ṣe àwárí oògùn. Àwọn olùlò máa ń yan ipò wọn gẹ́gẹ́ bí aláìsàn, ọmọ ẹbí, tàbí olùpèsè ìtọ́jú ìlera nígbà tí wọ́n bá ń forúkọsílẹ̀. Àwọn aláìsàn lè kọ àkọsílẹ̀ ojoojúmọ́ nípa ìtọ́jú wọn, wá àwọn oògùn àti ìtọ́jú láti gbogbo àgbáyé, kí wọ́n sì rí àwọn olùlò míì tí wọ́n ní irú àìsàn kan náà nípasẹ̀ ètò àlgọ́rítímù àbá-ìmọ̀ràn. Ohun elo náà wà lórí iOS àti Android. Èròngbà rẹ̀ ni láti fún àwọn aláìsàn tí wọ́n ní àìsàn tó ṣọ̀wọ́n ní àkíyèsí àti ìtọ́jú tó dọ́gba.

Ìdánimọ̀ Náà

Nípa Àmì-ẹ̀yẹ Idẹ A' Design Award

RareMe Ohun elo Alagbeka jẹ́ olùborí Àmì-ẹ̀yẹ Idẹ A' Design Award, ìdánimọ̀ olókìkí gan-an tí a fún àwọn àwòṣe tó tayọ tí wọ́n yàtọ̀ nípasẹ̀ ìṣẹ̀dá, àrékérekè àti ọgbọ́n inú. Àwọn olùborí Idẹ jẹ́ àwọn ohun èlò tó ní ìjáfáfá gan-an tí wọ́n sì ní ìṣẹ̀dá tó yani lẹ́nu tí wọ́n ń ṣe ẹ̀rí ìrírí gbígbòòrò, ìrònú àti ọgbọ́n àwọn olùṣàwòṣe wọn. A retí pé RareMe Ohun elo Alagbeka yóò jẹ́ ohun tí a kà sí gidigidi, tí a gbóríyìn fún tí a sì nífẹ̀ẹ́, tó jẹ́ ti ọ̀jáfáfá lọ́nà tó ṣe pàtàkì tó sì ní ìmúṣẹ̀dá tuntun. Àwòṣe tó borí Àmì-ẹ̀yẹ Idẹ A' Design Award yìí ń kó àwọn ọ̀nà tó dára jùlọ nínú iṣẹ́ ọnà, sáyẹ́ǹsì, àwòṣe àti ìmọ̀-ẹ̀rọ jọ, ó sì tayọ nítorí àfiyèsí rẹ̀ sí àwọn àlàyé kékeré. RareMe Ohun elo Alagbeka ń tẹ́ àwọn ohun tí a nílò lọ́rùn lọ́nà àgbàyanu, ó ń fọwọ́ kan àwọn ìfẹ́ inú, ó ń gbà ọkàn ó sì ń fa ìfẹ́ láti mọ̀ mọ́ra.

Lẹ́yìn Àpẹrẹ Náà

Àkójọ Ìròyìn

Àwọn ẹ̀tọ́, àwọn ọmọ ẹgbẹ́ àti àlàyé ìmọ̀ ẹ̀rọ tí olùṣàpẹrẹ pèsè.

Àwọn Ohun Àkànṣe: Rare diseases are currently affecting about 300 million patients worldwide. Due to their rare conditions, they cannot get the same degree of treatment and assistance as normal patients, especially in some developing countries. RareMe helps rare diseases patients with their recovery and therapy. By connecting with global medical research, institutions, hospitals, doctors, and drug developers, they can receive equal attention and care.
Ìwọ̀n àti Àpò: Launched on IOS and Android
Àwọn Àkọlé: Rare Disease, app, patients, crowd-funding, mutual aid
Ìmọ̀-ẹ̀rọ Ìṣelọ́pọ̀: RareMe is an APP,which connects patients and their families with health-care providers, such as hospitals, medical institutions, pharmacies, doctors, drug developers, pharmaceuticals companies, etc. It also links rare disease patients with similar conditions with medical workers through intelligent recommendation algorithm, so as to make them feel not alone.
Ìpèníjà Àpèsè: RareMe connects patients and their families with health-care providers, such as hospitals, medical institutions, pharmacies, doctors, drug developers, pharmaceuticals companies, etc.

The biggest problem is to contact all stakeholders, promote app through hospitals, medical institutions, and major media platforms, so that patients scattered around the world can know and join RareMe. With the help of a large number of patients gathering to solve the problem of drug research and distribution by low-cost crowdfunding.
Ìwádìí: Rare diseases are currently affecting 3.5% - 5.9% of the worldwide population. There are more than 7,000 rare diseases known in the world, however, only less than 10% of the diseases have approved treatment drugs or programs.

Based on this huge social problem, we have conducted extensive interviews with medical professors of Harvard University and Medical Laboratory of Zhejiang University, and are eager to connect rare disease patients around the world in a simple and portable way. We have connected many medical workers and patients via the development of RareMe. In order to improve this current condition, we will add in more and more health-care providers in the future.
Ìmísí: Rare diseases are lately affecting 3.5% - 5.9% of the worldwide population. More than 7,000 rare diseases are known, however, only less than 10% have approved treatment cures or programs. Due to the patients’ rare conditions, they’re not able to get the same degree of care and assistance as normal patients. Moreover, proper medicines and treatments are not available in some developing countries. They have few wardmates to communicate with, either.
Àkókò Iṣẹ́ Àkànṣe: This project started in September 2019 in Hangzhou, China, and it is still under developing.
Ìlànà Ìṣiṣẹ́: At the beginning of registration, user will choose their own role as patients/family members or health-care providers, then enter the home page. Patients can write disease fighting diaries, seek for other users who have similar syndromes and fight together. They can also seek drugs and treatments around the world. As for health-care providers, they can contact patients quickly via RareMe and offer help.
Àwọn Ọmọ Ẹgbẹ́: Cong Fang
Shijian Luo
Jingzhao Pan
Tianhe Zhang
Huan Lin
Ìfọwọ́sí Àwòrán: The four images used in the app design are from the SHETU website(https://699pic.com/), and have been authorized. The authorization agreement is shown in the link
Link: https://pan.baidu.com/s/1-s5VTAN_XWqHc2ZyToIegQ
Password：70bo